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I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....

Sunday, November 27, 2011

Sunday's School Podcast - November 2011

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Sunday, November 6, 2011

Kindergarten Awareness 2011

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Thursday, November 3, 2011

Timmy's 8th Birthday Party


It's hard to believe that Timmy is EIGHT!!! We had his birthday party at school again this year so that all of his friends could attend. The party theme this year was "Pirates." Even the cake had pirate ships and dragons on it! We brought in Timmy's sailboat swing, a big Giga ball This is a huge ball in which kids/adults can get into and roll around. And a treasure chest pinata, filled with chocolate gold coins and skittles.. All of the kids including the adult kids had sooo much fun. They all found the Giga ball to be the most fun!

I believe this was Timmy's most favorite of all of his birthday parties. Why do I say this? Because Timmy actually ate a entire piece of birthday cake! Yes, it was a small piece. But in past years he only would accept a couple of bites before he had had enough.

Enjoy the slideshow of his birthday party pictures!
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