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I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....

Wednesday, August 29, 2012

Fall School Pics 2012


Emily School Pic 2012


Timmy School Pic 2012



Timmy and his friend Parker.

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Saturday, August 25, 2012

Vaccum obsession





Note: Notice the picture on the TV screen.

Most kids at the age of two years want to watch Barney, Elmo, or Sponge Bob.

Not Nate! The other morning I was flipping through the stations on T.v. trying to find something educational to entertain Nate for a few minutes. I passed by the infomercial of the Hoover Turbo vacuum cleaner. Nate happened to notice the ad on the T.v. He started throwing a temper tantrum requesting to watch the infomercial. Strange as it may seem, he stood in front of the T.v. for the entire 30 minutes that the Hoover Turbo infomercial aired.

Most kids at the age of two request toy cars, dolls, action figures, or tea sets. Oh No, not Nate! He request a vacuum cleaner!

Now how lucky can I get? This kid LOVES to help clean! Can I be lucky and his cleaning obsession, addiction or his OCD last through his teenage years?

I know what Santa is bringing this little guy for Christmas....

Sshhh, let's not tell him, but Santa may bring him a cordless vacuum which actually will pick up the trash on the floor.
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Saturday, August 18, 2012

Playground Fun, August 2012

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Wednesday, August 1, 2012

Once upon a nurse.


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