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I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....

Monday, December 3, 2012

12 Days Of Christmas - Special Needs Kids Version

                The Twelve Days Of Christmas Special Needs

 

On the first day of Christmas, the good Lord gave to me: 

a child with special needs.

 

On the second day of Christmas, the good Lord gave to me: 

a heart full of love for my child with special needs.

 

On the third day of Christmas, the good Lord gave to me: 

an ache in my heart and a heart full of love for my child with special needs.

 

On the fourth day of Christmas, the good Lord gave to me:

a tear in my eyes, an ache in my heart and a heart full of love for my child with special needs.

 

On the fifth day of Christmas, the good Lord gave to me: 

an unsuspected strength for the tear in my eyes and the ache in my heart and my heart full of love for my child with special needs.

 

On the sixth day of Christmas, the good Lord gave to me: 

a ray of hope, an unsuspected strength for the tear in my eyes and the ache in my heart and my heart full of love for my child with special needs.

 

On the seventh day of Christmas, the good Lord gave to me: 

a sense of humor, a ray of hope, an unsuspected strength for the tear in my eyes and the ache in my heart and my heart full of love for my child with special needs.

 

On the eighth day of Christmas, the good Lord gave to me: 

supportive friends, a sense of humor, a ray of hope, an unsuspected strength for the tear in my eyes and the ache in my heart and my heart full of love for my child with special needs.

 

On the ninth day of Christmas, the good Lord gave to me: 

remarkable doctors & therapists, supportive friends, a sense of humor, a ray of hope, an unsuspected strength for the tear in my eyes and the ache in heart and my heart full of love for my child with a special needs.

 

On the tenth day of Christmas, the good Lord gave to me: 

an appreciation of small accomplishments, remarkable doctors & therapists, supportive friends, a sense of humor, a ray of hope, an unsuspected strength for the tear in my eyes and the ache in my heart and my heart full of love for my child with special needs.

 

On the eleventh day of Christmas, the good Lord gave to me: 

a sense of pride and courage, an appreciation of small accomplishments, remarkable doctors & therapists, supportive friends, a sense of humor, a ray of hope, an unsuspected strength for the tear in my eyes and the ache in my heart and my heart full of love for my child with special needs.

 

On the twelfth day of Christmas, the good Lord said to me: 

Reach out and share your sense of pride and courage, your appreciation of small accomplishments, your remarkable doctors & therapists, your supportive friends, your sense of humor, your ray of hope, your unsuspected strength for the tear in your eyes and the ache in your heart and your heart full of love for your child with special needs.

 
(Aurthor Unknown)