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I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....

Friday, April 17, 2009

Easter-A Trip Back In Time

I was looking through some old pictures of the kids last night and came across these Easter pictures. I thought that this would be a good time to take a trip back in time to see just how much the kids have changed over the years.

Emily and Timmy Easter of 2008.
Emily is almost 3 years old and
Timmy is 4 years old.

This is Emily's 1st. Easter picture.
This picture was taken in 2006. Emily
was 8 months old. Isn't she ADORABLE
In the Bunny Ears?!

Timmy's 2nd Easter picture.
This picture was taken in
2005. Timmy was almost
18 months old. He STILL LOVES
his bunny. The bunny's name is
Scratchy Bunny. He also LOVES
birds and frogs.

Zachary, Timmy and Emily's
half brother. This picture is a school
picture that was taken in the Spring
of 2007. Zachary was 11 years old.

This Easter we didn't do much. Emily attended church with her Aunt Angie and cousin Tiffany. After church Emily and Timmy helped me to dye boiled eggs and decorate them with stickers. We bought some really cool eggs that talk, to make Easter egg hunting more enjoyable for Timmy. The eggs were a bit pricey $5.00 each. They came in 6 different bright colors. Merry, Timmy's home health nurse and I split the cost, so we were able to buy all 6. At least, these eggs can be used year after year. So we should be able to get our monies worth from the use. We gave the kids an egg hunt with the talking eggs. The eggs were a sure hit with Emily. PaPa ended up having to hide the eggs once more just so Emily could have her very own egg hunt. She really enjoyed being able to follow the sound of the egg talking, rather than just looking for the eggs. Timmy thought that the talking eggs were funny. Timmy would laugh every time he would hear one of the eggs make a sound. We also made up a small Easter basket for Timmy and Emily. Timmy's basket had a UNC basketball outfit, a vibrating baseball with bunny ears that plays "Take Me Out To The Ball Game" a wind-up egg and some pop rocks candy. Emily's basket was a wicker basket with a hat covering the bottom and sides of the basket. He basket contained some candy, bubble solution, sunglasses and lip gloss. I bought Zachary 2 shirts and 2 pairs of shorts. I've been informed that 13 year olds no longer believe in the Easter Bunny! Hmmm, that is funny, cause the same 13 year old swears that he still believes in Santa!

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