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I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....

Tuesday, June 15, 2010

Trip To Grandma's

Now that school has ended for the year, Floyd and Emily headed to visit grandma in Illinois. Emily will be staying with grandma and her Uncle Earl for a month. Then grandma and Uncle Earl will bring Emily home. And grandma will visit with us for a month. So that she will be here when Nate is born.

Floyd and Emily had a few hours to kill in Washing D.C. before their next Amtrek train connection to Illinois. So Floyd took Emily sight-seeing. She had lots of fun. She especially loved the coursel in front of the Castle. I offered to take her to the local mall so that she could ride the coursel there, but she said "nah. It's not as fun." Here are a few pictures....

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