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I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....

Saturday, October 23, 2010

3 - Months Old

And you think I'm gonna sit here alone for how long? I'll give you five minutes and then I'll scream. Umm, on second thought, hurry up and finish taking my picture so I can scream so that you will pick me up and hold me again!

I'm lying here like a good boy ONLY because it's nap time and I'm tired.

Daddy says that I have to share you with Tim-Tim and Emily. I don't know if I can take yet another night of Daddy singing Christmas songs while I'm trying to go to sleep....!

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