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I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....

Thursday, December 23, 2010

5-Months Old

It is amazing the difference one month has made in your physical and cognitive development. Physical and vision therapy started one month ago. When these therapies started you were unable to do much of anything. No matter what we did to try to stimulate you, all you wanted to do was sleep the day and night away. But look at you now.....

You are now able to roll over in both directions, hold your head up while sitting, push yourself up onto your forearms, and bare your weight on your feet while being held in the standing position.

You are able to follow people and objects much better with your eyes. You turn your head in the direction of a person when they call your by name. You can manipulate a toys with both hands while playing with it. But your all time favorite play thing is your hands and thumbs. You are starting to reach for and explore desired toys.

You are starting to tolerate being apart from Mama for longer periods of time. And can play alone for short periods of time.

Your favorite time of the day is bathtime. While getting you undressed for your bath you always laugh and smile with anticipation of what is to come. Following your bath, playing Peek-A-Boo with the bath towel is one of your favorite games.

You are a good eater. You are now taking 6-8oz of breastmilk every 4-5 hours. I have tried feeding you some solids. You did not care anything for sweet potatoes. But LOVED the squash. Or maybe this liking was because Timmy was sharing him meal with you.

You are a very good baby. You seldom cry, only when you have a need that you want taken care of right away. These past 5 months have flown by. I can hardly wait to see what the future holds for us together.

1 comment:

ANewKindOfPerfect said...

He is so cute, and it sounds like he's doing great! :)