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I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....

Friday, May 22, 2009

Almost There!

Some people have asked me what the conformers look like that Timmy has in his eye sockets and how big they are. Here is a comparison picture of the size of the conformers that Timmy currently has in each of his eye sockets.





The conformer is on the left. It measures 18mmx16mm. As you can see, the conformer is an almost clear piece of plastic, which is somewhat shaped like a sea shell. On the right is a dime. If you place the conformer on top of the dime, they are both the same size.


Timmy had surgery with his Occular Plastic Surgeon today. Timmy's eye sockets have made great progress expanding. Timmy's left eye socket is ready for a prosthetic eye. His right still has a bit more to grow, before a prosthetic eye can be placed. IF we can be successful in preventing Timmy from "picking" the conformers that are currently in place out, in 3-6 months it is very possible that we could be choosing prosthetic eyes for Timmy. Even though the left eye socket is ready for a prosthetic eye, the Occularist wants to wait til both eyes are ready. He feels that being Timmy will have to go into surgery the first time the prosthetic eyes are placed, that it would be easier on Timmy to do both eyes at once, rather than having to schedule two different surgeries and possibly more IF Timmy happens to remove the conformers that are currently in place.



This picture was taken today following surgery, once the bloody drainage had been cleaned from off of his eyelids. As you can see, he wasn't in the mood for picture taking. I had just finished giving him a long lecture on how WE are going to keep him from removing the conformers this time.

With his red hair, his daddy's temper and his stubbornness, I think that he would look georgous with green eyes. What do you think???
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