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I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....

Saturday, September 18, 2010

A Day At Fort Fisher Aquarium

Took the kids to Fort Fisher Aquarium today. This was there first time visiting the aquarium. They all had a blast. First rule of thumb though, don't give the responsibility of picture taking to a 14 year old. He was more interested in taking pictures of the fish than his siblings. I will admit that the pictures that he took of all of the different fish would make a great computer slideshow screen saver.








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1 comment:

ANewKindOfPerfect said...

What fun! I love the swing post below this one too. That swing is amazing - where did you get it?

I was just checking in on you to hopefully hear about the new baby ....

September 19, 2010 at 6:40 PM

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