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I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....

Thursday, June 16, 2011

Graduation / Awards Day Celebration 6/2011

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Today was a bitter sweet day for everyone at school. Trepreme, pictured above graduated from 5th grade. His teacher, Mrs. Bishop and the assistant teacher, Mrs. Kristi have been teaching Trepreme since his early days at Easter Seals UCP.

Trepreme has been Timmy's best friend at school for two years. I have enjoyed listening to the stories told by Timmy's nurse's which detailed many days of mischief and trouble making by these two friends.

We all wish Trepreme all the best in the coming year(s). And he will be dearly missed by his teacher and his friends.


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