Not having any luck.....

We just aren't having any luck with Timmy being able to keep the comformer(s) in his eyes. Yesterday morning, the comformer that was in his right eye came out. It was a given that this was going to happen though. From day 1 the right eye had been very red, inflammed and swollen. Timmy needing Tylenol with Codine to help ease the pain was another clue. Usually Motrin or Children's Tylenol helps to ease any discomfort. We did everything that we possibly could to prevent this from happeneing. We used warm compresses, cold compresses, we gave him Motrin to try to reduce the swelling and we even used the Tobradex eye ointment 4 times per day instead of the 2 times prescribed to try to help with the inflammation. I'm not sure if the comformer coming out was due to his body being sensitive to the skin glue that was used to hold the comformer in place or possibly some other irritant that got into the eye during surgery. Anyway, this morning the right eye looks 90% better. It is still a little red and swollen. I just keep asking myself "Is putting Timmy through this really worth it?" We have been told that if we don't do something that his face as it grows will be deformed because the bones around the eye sockets will not grow correctly.? And that this could also play a part in his nasal passages closing, because the way the bones in the face would grow, it would put pressure on his nose.? If this is true, we "have" to continue to go through with the surgeries, if we ever want Timmy's trach to be removed. Timmy's left eye looks wonderful! Dad has a call into Dr. Richard. Timmy has 2 week post-op follow up appointment tomorrow. Usually if Timmy isn't having any issues Dr. Richard doesn't need to see him. Tomorrows appointment was scheduled because of the right eye being so irritated, red and swollen. Now that the comformer has come out, we want to know if he still wants to see Timmy or just schedule surgery to replace the comformer.?