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I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....

Saturday, March 7, 2009

Your Cross

Merry (one of Timmy's home health nurses) and I took Timmy to Wal-Mart last night to buy a bike helmet. Timmy received a bike for Christmas. The weather has been so cold that we haven't been able to take Timmy outside to ride. The weather today (Saturday) and tomorrow is suppose to be gorgeous, mid to upper 70's and sunny.

Timmy hates to go shopping. So us asking Timmy to cooperate and tolerate us trying on bike helmets was like asking for the moon. After us trying on what seemed like a million helmets to Timmy, he started getting very angry with us and crying. So we hurriedly chose a helmet and went on our way to finish shopping. Being that Timmy has microcephaly (a small head) we were heading to the craft department to see if we could find some foam or something else to use to stuff the helmet so that it would better fit Timmy's head.

Timmy's cries of anger caught the attention of one of Wal-Mart's employee's. We explained that Timmy hates shopping and besides our outing had thrown off his regular night time routine. The employee questioned us about Timmy's eyes being swollen and bruised. We explained that Timmy had had surgery a week ago. And that he was born without any eyes. The employee started telling us about her daughter's friend, who just had a baby who was born without a rectum and his intestines outside of his body and all of the issues that the baby and his parents have had/are having to go through.

Once again I was shown that even though things in our life with Timmy may seem hectic and overwhelming, there is always someone else out there who is having to deal with much greater issues.

So here is a poem that I came across accidently today. I thought that I wouold share.

~ ~ Your Cross ~ ~
The young man was at the end of his rope. Seeing no way out, he dropped to his knees in prayer. "Lord, I can't go on," he said. "I have too heavy a cross to bear."

The Lord replied, "My son, if you can't bear its weight, just place your cross inside this room. Then, open that other door and pick out any cross you wish."

The man was filled with relief. "Thank you, Lord," he sighed, and he did as he was told. Upon entering the other door, he saw many crosses, some so large the tops were not visible. Then, he spotted a tiny cross leaning against a far wall. "I'd like that one, Lord," he whispered.

The Lord replied, "My son, that is the cross you just brought in."

When life's problems seem overwhelming, it helps to look around and see what other people are coping with. You may consider yourself far more blessed than you imagined. ~Author Unknown

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