Another Update

Dad (Floyd) spoke with Timmy's pediatrician mid-morning. The cultures that were taken on Thursday, have not grown out anything.

We placed yet another call into the ENT on call. No one returned our call of course. So we decided that if we can't get anyone to return a call to address our concerns, we would just go to them to get our concerns addressed.

We took Timmy to the ER at UNC-Chapel Hill, N.C. Timmy's Endocrinologist felt that it was in Timmy's best interest to be admitted to hospital, being that we are having to give Timmy more than double the normal amount of insulin just to keep Timmy's blood glucose levels in the upper 200's. Dr. Ali (Endocrinologist) also felt that by Timmy being admitted to hospital test could be run just to check everything to make sure that there isn't an underlying cause to the elevated blood glucose levels.

Dr. Sellers (I think this was the Dr.'s name), the ENT resident on call, came to the ER to examine Timmy. He took a good look into Timmy's nose and mouth. The Doc stated that Timmy is healing very well. He also said that everything that we have been seeing (the white patches on Timmy's tongue and throat) is normal. The patches are where the areas are healing and the scab will fall off from. The yucky yellow drainage from Timmy's nose and the tan drainage into his mouth and airway is also normal. And more importantly, he reassured us that the horrible, drop dead, foul smell that we smell from Timmy's breathe is also normal. The horrible smell is what is/was really concerning to me. The day following surgery the smell I will compare to that of the sour smell from "garbage truck soup." And by Thursday the smell had changed to what I will compare to "dog poop or a dirty wet dog" smell. Why weren't we told these things were normal and to expect something like this upon discharge following surgery??? If we had been told, it sure would have saved ALOT of unnecessary worry!

A X-ray and blood work have been preformed. The X-ray results are back and the X-ray looks very good, no sign of a pneumonia or other respiratory issue. Only some of the blood work results are back, and those that are back are normal.

Dr. Ali feels that most likely that the elevated blood glucose levels are due to the pain and stress of the surgery. As "Mom Endocrinologist" I'm not sure if I buy that explaination completely. Timmy has undergone many surgeries, the most stressful being the placement of his Mic-key button with a Nissen Fundoplacation. Following this surgery Timmy's blood glucose levels didn't become this wacky. Well, the blood glucose levels did go wacky, but that was due to the Pediasure, not from the stress and pain following the surgery.

We have been giving Timmy Tylenol and Motrin to help with his pain. And Timmy has also been receiving a stress dose of his Cortef since the evening before surgery. But given all of the issues that we were seeing following surgery, we were afraid that by giving the pain medications we might somehow mask a temp that would indicate an infection. In my opinion, the stress dose of Cortef, the antibotic that was prescribed as a precautionary measure following surgery to try to prevent an infection and the Tamiflu that the pediatricain prescribed, because the prelimenary results in the office showed that Timmy had Influenzia A & B, is most likely the reason that Timmy's blood glucose levels have been elevated. Now that the Amoxil and Tamiflu have been discontinued, hopefully we will see Timmy's blood glucose levels start to return to normal.

I hope that when the rest of the results come back, they are normal as well. I hate to see my little man so sickly and not himself. I miss my smiling sunshine in the morning.

Just a note to self...When the on call pediatrician came in to the ER to see Timmy, he pointed out a red spot on Timmy's back, mid-upper right side near spine. I have never seen this before and am not sure what it is or what caused it. So I'll keep an eye on the red spot. Probably nothing, but can't hurt to follow up to make sure that it goes away.

Good Nite Timmy. Eskimo Kisses! MaMa Loves You!!!