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I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....

Thursday, May 7, 2009

Sunshine and Coffee

Timmy was released from hospital yesterday. We arrived home about 4:30pm. When Merry (Timmy's home health nurse) and I arrived, dad and Timmy met us in the hallway of the Peds. unit. It was so nice to see Timmy smiling and to be able to hear his contageous laughter once again!

The blood work, x-rays, ultrasound, and cultures (blood, urine and sputum) all came back with negative results. Dr. Ali feels that Timmy's needing to be hospitalized, was due to the stress from the pain from the surgery. Thus, the stress and pain caused Timmy to have uncontrollable blood glucose levels. Timmy's blood glucose levels are still slightly elevated, but much more controllable. The blood glucose levels have been in the mid 200's. Today and yesterday the blood glucose levels have been in the low to mid 100's.

I have to admit, this is one time that a doctor is correct. Dr. Ali's diagnoses of the cause of Timmy's elevated blood glucose levels, was due to the pain and stress from the surgery. So this goes to show that sometimes caring and loving doctors can be right in their diagnoses. And mom has to swallow her pride and admit that this time she was wrong!

This morning and yesterday is the first time in over a week that Timmy has smiled or laughed. It was so nice to be able to wake up this morning to my sunshine and cup of coffee. Timmy's smile the first thing in the morning is like a ray of sunshine and his contageous laughter is better than a cup of coffee.

Seeing Timmy's smile and hearing his laughter really makes me think. With sleep deprivation, the stress of everyday life, depression, anxiety, fatigue, aches and pains, etc....Who am I to complain? What right do I have to do so?

With all of the illnesses, hospitalizations, surgeries, doctors and nurses poking and prodding, the endless needle sticks to obtain an I.V. site or to get blood samples, not being able to verbalize thoughts and feelings, not being able to run or walk to join in on the fun with the other "typical" playmates/classmates, having to depend on others for your needs for survival, etc...This is Timmy! And through all of this he STILL finds the ability to smile and laugh. So I ask myself once again, Who am I to complain? What right do I have to do so? Seeing Timmy's smile and hearing his laughter the first thing in the morning makes all of my aches and pains, worry and depression go away, at least for a little while. And once they return I go to Timmy to get a little more sunshine and another cup of coffee!

1 comment:

Anonymous said...

Timmy is a special gift of God. . .but then you already know that! Love your positive, thankful attitude. As you said, who are we to complain, when someone like Timmy, with so many medical problems, can laugh and be happy! He could teach us all something about being happy! So keep enjoying sunshine, coffee, and special times with Timmy! Housework can wait: kids are more important!