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I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....

Tuesday, January 26, 2010

Wink, Wink

Timmy went yesterday and had his very first fitting for his left prosthetic eye. We have been talking to Timmy about this very special day for quite a while. I (mom) wanted Timmy to have nice pretty green eyes. But every time I would speak to Timmy about possibly one day getting green eyes, he would protest. So one day I asked him what color of eyes he wanted? I started naming off colors. Brown? No response from Timmy. Green? A definate disapproval by his vocalizing his disagreement. Hazel? No response. Blue? Timmy started laughing hysterically. This his Timmy's way of telling us YES. So blue eyes it is.

You can't tell much about his new blue eye in this picture because the eyelids are still pretty swollen from Friday's surgery and Mr. Boyd from Carolina Eye Prosthetics Placing and Removing the eye to get the perfect fit. Timmy also may need surgery in the future to shorten the muscle in his left eye lig so that his eye can be more open.

This is the very first picture that we have of Timmy with such a broad smile. This picture itself speaks a 1,000 words!!!!!

Isn't he just the cutest here????

2 comments: said...

Totally cute - he looks so happy!

Bunny said...

HOW AWESOME! You go Timmy with your new beautiful blue eye!