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I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....

Sunday, May 23, 2010

From A Child's Perspective

        Yesterday Emily and I were playing with a geometric shapes puzzle. I was having Emily to name the different shapes. And we were discussing how many sides each shape has. There are 10-12 pieces to the puzzle. Each puzzle piece has a different color. One of Emily's favorite games with this puzzle is to match the colors. Even though each puzzle piece has a different color there is 2 shades of a color for the majority of the puzzle pieces. For example there are 2 different shades of blue and orange etc... Emily turned each puzzle piece over so that we couldn't see the colors. After taking turns trying to find matching colors. Once all of the matches had been found I pointed out to Emily that there were a few different pieces which didn't have a match. Emily piped up and said
]Oh that is ok if these are different shapes or colors. They can still be friends and play together." She then proceeded to pick up the unmatched puzzle pieces and put them together as if the puzzle pieces were hugging.
Why can't everyone in this world see things from a child's prespective? If we all could what a wonderful world we all would live in.....
After sharing this experience with Emily I can say I'm so proud of her for not seeing the differences in things and people. And her being willing and able to accept those who are different. I'm so proud to be her mommy. It also eases my fear that I have somehow failed to instill in her that all people are different but should be accepted and respected for whom they are on the inside not the out.
Today with the negativity from others and her peers at school I had been afraid that her outlook on those who are different would change, even though she has a unique needs brother.
Mommy Loves you Emily!

1 comment:

aunt Angie to Timmie said...

During Sunday school class, we played matching card games with colors shapes and with words. I am glad she enjoys these type of games