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I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....

Saturday, March 5, 2011

Back Where He Belongs

I'm sooo  Happy! My Natie Cake is FINALLY back home! It took almost 2 weeks before any of us stopped looking into the Pack-N-Play, which is in the living room and where Natie Cake spend some of his time. When I would pass by and look into the Pack-N-Play, there were time in which I wished very hard that I could will him to reappear. I so missed his clinginess, his smile and hearing his laughter.

We spent over 10 minutes laughing together while Dad placed their belongings into the trunk of the car.

Now he is safe and sound, back where he belongs. In my arms and safely tucked into his own bed.

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