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I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....

Wednesday, March 23, 2011

Wow, You Are 8 Months Old

                        
Wow, you are 8 months old today! Where has the time gone? This past month was filled with great adventures and lots of development.

You took your very first Amtrek train ride to IL to visit grandma. Whew, we both survived being away from each other for 3 long weeks. While Daddy loaded your stroller and the luggage into the car, you and I spent the time hugging, kissing, laughing together and getting reaquainted. It felt sooo good to have you back in my arms. 

You really enjoyed your visit with Grandma and your cousin. While visiting Grandma, daddy gave you Enfamil Soy formula and fed you baby food. You definately missed Mommy's milk. Alomst a week, you refused at eat or drink anything, except Mommy's milk.

Nate 7 months. Cousin Declan 3 months. 


Your personality is still flurishing. Along with the happy, loving baby, full of laughter, you are now very demanding and opinionated. Things in your life "have" to go your way and they "must" be done on your schedule, not a seconds delay. If your wants/needs aren't met immediately, you perform a lung capacity test, which sends brother Timmy into hysterical laughter.



Mommy's Muffin Man is no longer a muffin. He has grown into Mommy's Natie Cake-a-roo. Your all time favorite daily activity is jumping/bouncing. There have been days in which I have questioned your genetic makeup. Wondering if it were possibly that some of your ancestors may have been kangaroos.

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You are now on the move! You have mastered Comando crawling. If you want something, it takes only seconds for you to get there. Mommy's cell phone is a BIG favorite. There is sometimes a game of Tug-a-War, if I'm holding you and the phone rings. Or if you see the phone in my hand, you come speed crawlong to try to get it from me. I just hope that your interest in cell phones isn't a sign of what is to come. But you do have some of your Daddy's genes. And your Daddy is a talker!

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You are playing more and more on your own. Exploring toys. You also rally enjoy being read to. This crinkly book is one of your favorite toys.

You are testing your muscles and exploring just how your body works.. You are starting out small, with trying to pull up to stand. You still absolutely refuse to sit!

You are fascinated with anything that has lights. And your new found interest is a mirror. "Mirror, Mirror In My Hand, Who's The Fairest Little Boy In the Land?" Natie Cake-a-roo, of course!

Your all time favorite place in the entire house is Timmy's room. More accurate, is Timmy's bed. If someone doesn't take you into see Timmy after you have your breakfast in the mornings, you start fussing and won't stop until you see your brother. You repeat this in the evenings. You insist on going into Timmy's room to see him get dressed after his bath. Mrs. Dottie, after Timmy's bedtime routine has been completed, she sometimes reads a book to Timmy and you really enjoy this time together with Timmy.

Since your return home from Grandma's house, your refuse to take a bath in your baby bathtub. You demand to be placed into the Big Boy bathtub. You perfer that you lotion following your bath be slightly heated before applying it to your body. Warming the lotion in our hands just won't do.

I hate that I had to stop our "special" time together. But now that you have teeth, you insisted on using Mommy as a teether. Ouch!  Even though our "special" time together is no more. my favorite time of the day is still holding you while you take your last bottle of pumped breast milk before bed. Your sweet baby smell. Your soft quiet breathing as you drift off to sleep. Watching the expressions on your face while you sleep. Your warm body against mine.

                                        I Love you Natie Cake-a-roo!

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