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I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....
Showing posts with label Awards. Show all posts
Showing posts with label Awards. Show all posts

Saturday, February 5, 2011

Calendar Kids

Timmy along with 12 other extraordinary children, all of them patients of N.C. Childrens' Hospital, will be featured in the 2011 N.C. Childrens' Hospital "A Patient From Far Away" calendar. The children and their families hail from as far west as Bryson City in the mountains to as far east as Newport near the coast. Each month N.C. Childrens' will debut the story behind the patient featured in the calendar spread for that month. The Calendar Kids and their story can be viewed by visiting www.ncchildrenshospital.org/calendarkids
To read a story from a past month, simply click the name of the child you would like to learn more about. The links to the previous months are located to the left of the page.

Timmy's picture and story will debut in October. Yes, Timmy's birthday is in November. Being that UNC's telethon airs in November, the calendar kid for that month is the child being featured during the telethon.

We have a paper calendar, which has a small story entry of each child featured each month. I personally have really enjoyed reading about and getting to know the featured children.

Wednesday, October 14, 2009

The Lemonade Award


Carly from www.carlyandjay.wordpress.com nominated me to receive the Lemonade Award. Thank You Carly!! I have to admit, I feel flattered to have received this nomination. When I started this blog, it was my hope and intention to have a place where I could offer information, inspiration and support to others. I really enjoy writing on our blog, but I feel that there must be more that I could offer to others that would be helpful as well as interesting. So if anyone would like to drop me some suggestions or ideas as to what you would like to see on our blog, feel free to do so.

What is the Lemonade Award?
A Lemonade Award is given to bloggers who show a positive attitude, gratitude, and a willingness to share their ideas, support and online friendship. Another words, When life hands you lemons, you make lemonade and share the wealth.

Here are the rules of the award:
- Put the Lemonade logo on your blog or within your post.
- Nominate at least 10 blogs with great attitude or gratitude.
- Link the nominees within your post.
- Let the nominees know they received this award by commenting on their blog.
- link to the person from whom you received this award.

Here ae my nominations, but not in any particular order:
1. http://anewkindofperfect.blogspot.com/
2. http://danieljohnmaxwellspranger.blogspot.com/
3. http://www.gavinowens.com/
4. http://iveysirmans.blogspot.com/
5. http://www.myspecialks.com/
6. http://littlewonders-heather.blogspot.com/
7. http://thetenderscribe.blogspot.com/
8. http://lovethatmax.blogspot.com/
9. http://theashleykids.blogspot.com/
10. http://www.cartermcates.com/

Enjoy the reading and the new friendships.