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I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....
Showing posts with label Therapies. Show all posts
Showing posts with label Therapies. Show all posts

Wednesday, November 4, 2009

Physical Therapy

I've been a good girl this year, I just hope that Santa agrees. I REALLY would like a Digital camera for Christmas. Right now all I have for taking pictures is my cell phone. So I apologize that my pictures are a bit blurry.

Here are a few pictures of Timmy during his physical therapy session yesterday. He really wasn't into therapy yesterday. Well, not with the therapist who comes to the house. The therapist who comes to the house to see Timmy is an "all play aside" serious and time for hard work type of therapist. She has been working with Timmy for almost 4 years. So she doesn't buy the complaining, the pretending to be waaaay too tired for therapy or the pretending to fall asleep routine that Timmy likes to sometimes "try" to get away with. And fingers/hands in the mouth are DEFINATELY a NO, NO!




Monday, November 2, 2009

Look At Me!


This is the very last picture of Timmy at age 5 years old. Tomorrow the little boy that we were told would not survive will be 6 years old! He has come a Loooong way since his birth developmentally. Last year at this time, he would have NEVER been able to stand up like this, not even for a short time. Tonight he stood by his bed unsupported for over 5 minutes.




Timmy and his older brother Zachary.

Saturday, June 6, 2009

Physical Therapy

Doesn't Timmy look like he is working very hard? This picture was taken during one of last weeks physical therapy sessions. I wish it was a bit clearer, but all I had on hand to snap this picture was my cell phone camera. As you can see, Timmy is standing nice and tall. He is even holding onto the walker with BOTH hands. Mrs. K is only providing minimal stability at Timmy's waist to help him to find himself in space, in order for Timmy to have better balance. We are so very proud of Timmy! Mrs. K. has only been using the walker in therapy with Timmy for about a month. This is one of a very few times that Timmy has been willing to fully participate and tolerate trying to use the walker. I guess after a long hard day at school, who would want to come home and work so hard also...?