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I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....

Wednesday, November 4, 2009

Physical Therapy

I've been a good girl this year, I just hope that Santa agrees. I REALLY would like a Digital camera for Christmas. Right now all I have for taking pictures is my cell phone. So I apologize that my pictures are a bit blurry.

Here are a few pictures of Timmy during his physical therapy session yesterday. He really wasn't into therapy yesterday. Well, not with the therapist who comes to the house. The therapist who comes to the house to see Timmy is an "all play aside" serious and time for hard work type of therapist. She has been working with Timmy for almost 4 years. So she doesn't buy the complaining, the pretending to be waaaay too tired for therapy or the pretending to fall asleep routine that Timmy likes to sometimes "try" to get away with. And fingers/hands in the mouth are DEFINATELY a NO, NO!

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