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I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....

Wednesday, November 25, 2009

Things That I'm Thankful For.....

Thanksgiving is my favorite time of the year. Even though my hips and waist scream at me at this time every year, I look forward to my dad cooking the turkey stuffed with his yummy homemade oyster stuffing, the candied yams, the cranberry sauce and I can't forget the collards. YUMMMMMY!!!!

This year there is a lot that I have to be Thankful for. I'm Thankful For.....

1. Finding a Cornea Specialist, despite my genetic eye disorder, was willing to preform a Boston Keratoprosthesis, which has restored my vision to the point where I can now read the 2nd line of an eye chart.

2. Timmy not having any major complications following surgery to remove his tonsils and adnoids.

3. Timmy continuing to do so WONDERFULLY following the removal of his trach in July!

4. Timmy's starting Kindergarten and having the WORLD'S GREATEST teacher!  Who has many, many, many years of experience of working with children who have multiple and varying degrees of disabilities.

5. Timmy's physical, mental, oral and cognitive inchstone development since school started.

6. Emily's developmental growth and maturity. Her loving and caring nature toward Timmy.

7. For all of my 7 children. Gwendolynn 24 years, Tamarah 22 years, Linwood Jr. 18 years, Zachary 13 years, Timothy 6 years, Emily 4 years and our ^Angel^ Josiah who graced our life for 1 short month almost 3 years ago. Each of my children have touched my life in their own special way. Filling my Heart and Life with Lots of Love and Memories that I will Cherish Forever!

8. For Floyd. Even though he has caused me some grief during the year, he has been My rock. My support and he has showered me with Lots of Love!

9. For Timmy's Home Health Nurses, Merry, Dottie, Julie and Amy. Thank You, so much for your support, dedication, love, care, time and patience with having to put up with not just Timmy's needs, but those of Emily, Zachary, myself and Floyd.


1 comment:

ANewKindOfPerfect said...

Happy Thanksgiving to your family! Enjoy the feast. :)

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