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I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....

Tuesday, November 24, 2009

Tuesday Cuteness



This is Emily's Fall of 2009 JPre-K picture. Isn't she just the cutest? Ya gotta love her big bright smile and her curly red hair. Just think, she was blessed with the $200 hair doo that most women would die for!


These pictures were taken last Wednesday, November 18th, during Emily's class "Being Thankful" Feast at school. We were unable to attend, due to the fact that I had a Doc appointment that I needed to keep. Thank goodness Emily's teacher was nice enough to have taken some pictures and printed them off for those of us parents who were unable to attend. Don't all of the children look adorable in their pilgrim costumes that they made?


All of the kiddos in Timmy's class got a really fun treat last week. Cory, one of the student teachers from UNCW, our local college, brought his motorcycle to school for the kids to see and explore. Timmy had a blast! In the picture, Timmy appears to be very serious. He is intently listening to Cory discribe all of the aspects of the motorcycle to him. The BIGGEST thrill for Timmy was when Cory actually started up the motorcycle while Timmy was sitting on it!

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