My photo
I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....
Showing posts with label Photos. Show all posts
Showing posts with label Photos. Show all posts

Thursday, March 1, 2012

Mrs. Simpson Says ....Smile!

 Mrs. Simpson, one of the Special Education Teachers at Timmy's school, has a passion for photography. She took pictures of Timmy and some of his friends and made this video.

Mrs. Simpson says....Smile!                   
                                        

Saturday, July 23, 2011

Happy 1st Birthday Nathaniel!!!

                HAPP1st BIRTHDAY!!!

It's hard to believe that a year has come and gone. We have had a lot of laughter. And shared a few tears. You have come a long way physically, cognitively, and socially.

*You have learned how to play Pat-A-Cake and Peek-A-BOO.
*You love music and dancing.
*Your two favorite games are placing objects into a container and taking them out. And crawling after a ball that you roll across the floor.
*Your favorite foods are steak, baked potato with sour cream, applesauce, cheese sandwiches, squash, carrots and ANYTHING that brother Timmy is eating or anyone else for that matter.
*You absolutely LOVE bath time and swimming in the pool. But I have to say, you are the first and only baby that I know who insists on taking their washcloth into the swimming pool.
*You can pull yourself to stand and stand without holding onto something for a short period of time.
*You have learned how to climb onto the furniture and find climbing onto and getting down from a fun game.
*At your WIC appointment on Friday (July 22nd) you weighed 20lbs 1oz and you were 28 1/2in. tall.

Monday, June 27, 2011

24th Annual Family Teacher Deaf-Blind Conference

We attended the 24th Annual Family - Teacher Deaf-Blind Conference in Greensboro N.C. June 24th - 27th. While Floyd and I were attending the conference meetings, Timmy on the other hand had fun, Fun, FUN with his old and new friends.

Here are a few pictures that I took at the conference. More are to come later. We should be receiving a CD of pictures that were taken during the day of all of the children enjoying the daily activities.



















Sunday, January 23, 2011

You Are 6 - Months Old


This is one of my favorite pictures of you. You have the sweetest expression on your face and I just adore the way that you have your hands together.

This past month has been an exciting time. You had your 1st. Christmas. And a lot of milestones accomplished.
You learned to push up on your arms. And you are willing to play alone for a few minutes, while mommy takes care of necessary housework.

You really enjoy floor time. Now that you are able to push yourself up with your arms, you tend to push yourself backwards and get yourself trapped in comprosmsing positions

You got your first 2 bottom teeth this month. You look sooo cute when you smile and show those pearlly white teeth.
You absolute HATE having to sit, even for short periods of time. I wonder if this could be a sign of what is to come once you become more mobile.

You have a wonderful personality, always smiling and laughing. You are very inquisitive, wanting to explore and learn how things work that are within your reach. You are also demanding. You are truly a routine oriented little guy. Everything in your life HAS to be kept on schedule or you have a terrible meltdown. You ability to focus and track people and objects has greatly improved. You LOVE playtime with your brother Timmy. After your breakfast you insist (by fussing) if we don't go into Timmy's room to spend time with him while he is getting ready to start his day.
You are starting to want to put yourself to sleep at night, rather than mommy rocking you to sleep. On the nights that you rather self soothe yourself to sleep, I miss our quite quality time that we share at bedtime.
This is a picture of you and daddy during your 2nd snow storm. The 1st snow storm in which we received 4-+ inches of snow. We both had an eye doctor appointment at Duke. After a long day of doctor appointments and returning home late, mommy didn't think about taking any pictures.

Our adventure together continues. What will next month bring? I can hardly wait to see.



Saturday, February 13, 2010

Tuesday, November 24, 2009

Tuesday Cuteness



This is Emily's Fall of 2009 JPre-K picture. Isn't she just the cutest? Ya gotta love her big bright smile and her curly red hair. Just think, she was blessed with the $200 hair doo that most women would die for!


These pictures were taken last Wednesday, November 18th, during Emily's class "Being Thankful" Feast at school. We were unable to attend, due to the fact that I had a Doc appointment that I needed to keep. Thank goodness Emily's teacher was nice enough to have taken some pictures and printed them off for those of us parents who were unable to attend. Don't all of the children look adorable in their pilgrim costumes that they made?


All of the kiddos in Timmy's class got a really fun treat last week. Cory, one of the student teachers from UNCW, our local college, brought his motorcycle to school for the kids to see and explore. Timmy had a blast! In the picture, Timmy appears to be very serious. He is intently listening to Cory discribe all of the aspects of the motorcycle to him. The BIGGEST thrill for Timmy was when Cory actually started up the motorcycle while Timmy was sitting on it!

Wednesday, August 26, 2009

Wordless Wednesday

Cool Sunshades Huh?

They left me sitting here all alone! What a big boy I am!

Pretty, Pretty Princess!

Giddy Up!

A Nurse and a Friend