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I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....

Sunday, January 23, 2011

You Are 6 - Months Old

This is one of my favorite pictures of you. You have the sweetest expression on your face and I just adore the way that you have your hands together.

This past month has been an exciting time. You had your 1st. Christmas. And a lot of milestones accomplished.
You learned to push up on your arms. And you are willing to play alone for a few minutes, while mommy takes care of necessary housework.

You really enjoy floor time. Now that you are able to push yourself up with your arms, you tend to push yourself backwards and get yourself trapped in comprosmsing positions

You got your first 2 bottom teeth this month. You look sooo cute when you smile and show those pearlly white teeth.
You absolute HATE having to sit, even for short periods of time. I wonder if this could be a sign of what is to come once you become more mobile.

You have a wonderful personality, always smiling and laughing. You are very inquisitive, wanting to explore and learn how things work that are within your reach. You are also demanding. You are truly a routine oriented little guy. Everything in your life HAS to be kept on schedule or you have a terrible meltdown. You ability to focus and track people and objects has greatly improved. You LOVE playtime with your brother Timmy. After your breakfast you insist (by fussing) if we don't go into Timmy's room to spend time with him while he is getting ready to start his day.
You are starting to want to put yourself to sleep at night, rather than mommy rocking you to sleep. On the nights that you rather self soothe yourself to sleep, I miss our quite quality time that we share at bedtime.
This is a picture of you and daddy during your 2nd snow storm. The 1st snow storm in which we received 4-+ inches of snow. We both had an eye doctor appointment at Duke. After a long day of doctor appointments and returning home late, mommy didn't think about taking any pictures.

Our adventure together continues. What will next month bring? I can hardly wait to see.

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