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I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....

Friday, January 14, 2011

Meet The GrandKids

Meet Distiny Marie. Age 2 and already potty trained and has been since she was 18 months old. She is truly a Mommy's girl.

Meet Jeremiah Ethan. Age 4. He was given his Uncle Timmy's middle name. Want to know facts about "Thomas And Friends?" He is the one to ask. He is hightly obsessed with "Thomas" and has been since he was about 1 year old.

This is my daughter Tamarah Kali. She is 23 years. I think that she looks ALOT like me. She is a very caring, loving, generous, helpful, respectful, humble, (geez I can't think of anything negative to say.) Except that she can have one heck of an ATTITUDE when she wants or doesn't get her way!

Emily and Jeremiah.
wmily: I'm the cute one.
Jeremiah: No, I'm the cute one.
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