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I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....
Showing posts with label Family. Show all posts
Showing posts with label Family. Show all posts

Saturday, February 25, 2012

A Tribute To My Mother

          FLY HIGH...  FLY FREE...
You May Be Gone, But Will Never Be Forgotten.... Your Love will Always Embrace Me, Even from Up Above....
          (August 9, 1939 - February 22, 2012)




          *** She is Gone ***

You can shed tears that she is gone
Or you can smile because she has lived

You can close your eyes and pray that she will come back
Or you can open your eyes and see all that she has left

Your heart can be empty because you can't see her
Or you can be full of the love that you shared

You can turn your back on tomorrow and live yesterday
Or you can be happy for tomorrow because of yesterday

You can remember her and only that she is gone
Or you can cherish her memory and let it live on

You can cry and close your mind,
be empty and turn your back
Or you can do what she would want:
smile, open your eyes, love and go on.

By: David Harkins


I LOVE YOU MaMa !!!

Sunday, December 25, 2011

Merry Christmas 2011

Merry Christmas!

This year we are celebrating our Christmas with Grandma in Chicago! We arrived in Chicago on December 21st. via Amtrek. We spent 4 wonderfully exciting days visiting some of the museums, going to Winter Wonderland sponsored by Bank of America and window shopping.

I'll post more pictures and our Christmas video from home later.

Have a Happy Holiday Everyone and stay safe!

Monday, June 27, 2011

24th Annual Family Teacher Deaf-Blind Conference

We attended the 24th Annual Family - Teacher Deaf-Blind Conference in Greensboro N.C. June 24th - 27th. While Floyd and I were attending the conference meetings, Timmy on the other hand had fun, Fun, FUN with his old and new friends.

Here are a few pictures that I took at the conference. More are to come later. We should be receiving a CD of pictures that were taken during the day of all of the children enjoying the daily activities.



















Monday, April 25, 2011

Grandpa and me

 There isn't anything better than some cuddle time spend with grandparents who spoik me!









Sunday, April 24, 2011

Hop-py Easter

This was Nate's 1st Easter. He had lots of fun playing with the Hide-Em and Find-Em Talking Easter Eggs. He also enjoyed mine and his share of dinner. He had mashed potatoes and cranberry sauce.

Timmy enjoyed his Easter dinner. Floyd pureed Timmy some ham, cabbage and mashed potatoes. Floyd and I even agreed to take a gamble and gave Timmy 1 slice of apple crumb pie for dessert. Being that Timmy is a diabetic, he doesn't often get the luxary of enjoying sweets very often. To err on the safe side, Floyd checked Timmy's blood glucose 2 hours after his meal. Surprise, Surprise!  Or maybe not, being Timmy's glucose levels lately have been like a wild roller coaster ride. Ater consuming 70 grams of carbs, he blood glucose was 123!  Timmy is one diabetic that NO ONE will ever figure out what makes him tick!

I leave you with some Hop-py Easter cuteness......