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I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....

Saturday, July 23, 2011

Happy 1st Birthday Nathaniel!!!

                HAPP1st BIRTHDAY!!!

It's hard to believe that a year has come and gone. We have had a lot of laughter. And shared a few tears. You have come a long way physically, cognitively, and socially.

*You have learned how to play Pat-A-Cake and Peek-A-BOO.
*You love music and dancing.
*Your two favorite games are placing objects into a container and taking them out. And crawling after a ball that you roll across the floor.
*Your favorite foods are steak, baked potato with sour cream, applesauce, cheese sandwiches, squash, carrots and ANYTHING that brother Timmy is eating or anyone else for that matter.
*You absolutely LOVE bath time and swimming in the pool. But I have to say, you are the first and only baby that I know who insists on taking their washcloth into the swimming pool.
*You can pull yourself to stand and stand without holding onto something for a short period of time.
*You have learned how to climb onto the furniture and find climbing onto and getting down from a fun game.
*At your WIC appointment on Friday (July 22nd) you weighed 20lbs 1oz and you were 28 1/2in. tall.

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