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I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....

Tuesday, July 26, 2011

Two spoken words....

After a semi-sleepless night, being up with Nate who is teething and running a temp of 102+- from a possible ear infection. A long, stressful day from a trip out of town to Duke Eye Center for an eye appointment for myself. There couldn't have been a better end to my day. Or a better way to ease the stress, but the two spoken words from Timmy said so clearly and with excitement in his voice upon our walking into the house, "Home, MaMa!" This alone was enough to ease all of my stress and bring a big smile to my face. And prepare my mind and body to deal with Emily's hyperactivity long enough to get us through her homework for the day.

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