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I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....

Thursday, July 7, 2011

2011 Chicago Trip

From June 29th - July 7th, Floyd and I went to Chicago alone for a little Rest and Relaxation. Floyd grew up in the Chicago area. So he took me around to see some of the sites. We toured Navy Pier, Saw the stained glass museum at Navy Pier, Saw buckinham Fountain, walked down to the lake front for awhile and did some shopping for the kids.

It was nice for a chnge not to have to stress over the daily tasks of the home, kids, Doc appointments. We had sooo much fun we have started to plan our next get away alone.

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