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I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....

Friday, November 6, 2009

Birthday Party

We had Timmy's 6th birthday party at school today. Even though the Circus Theme that I had planned on using had to be replaced by SpongeBob, the party was a success! The kids really had fun with the Fishing Game, the Tatoos and bouncing in the Bounce House! I didn't get as many pictures as I had hoped. One reason was because Dad's digital camera was having mechanical problems. (Saaanta, I want a Digital Camera For Christmas. Pleeeease!) And also because Dad was behind the camera taking the pictures. For some reason the men in my life, just don't know how to take a variety of pictures. Maybe for this reason, that is why I haven't seen too many male photographers in my lifetime? Anyway I hope that you enjoy the pictures.....















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