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I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....

Tuesday, November 3, 2009

Birthday Pictures

 Happy 6th Birthday Timmy!

                         
Here are a few pictures that were taken today, Timmy's Birthday. We didn't have a party, persea,. Dad fixed one of Timmy's FAVORITE meals, sauteed shrimp, roasted garlic with herbs potatoes and green beans and Hawaiian Delight.  Dad also bought a Chocolate Mousse with raspberry creme center. Not one of Timmy's all time favorites. If Timmy had his way, his birthday cake would be strawberry with applesauce. Timmy's BIG birthday party will be at school with all of his classmates on Friday.








The six things about you that make me smile. (In no particular order)
1. Your award winning personality.
2. Your photo-genic smile.
2. Your contageous laughter.
4. Hearing you call me MaMa. (Even though I can't get you to say "I Love You!")
5. Your upbeat nature in the mornings.
6. Your willingness and eagerness to learn and to please others with what you have learned.

We still have a long tough road ahead of us, but together we will make it through.
MsMa Loves You!
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1 comment:

Anonymous said...

Happy Birthday, Timmy!! :)

November 5, 2009 at 9:23 AM

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