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I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....

Thursday, February 10, 2011

Another Inchstone Reached

Yet another sign that my little guy is growing into a big boy!

By the time Timmy had reached 14 months old, he still hadn't gotten his 1st tooth. We were very concerned and asked his Pediatrician if this was normal, being that Timmy has a hormone deficiency. We were told to address our concerns with Timmy's Endocrinologist.

Timmy's Endocrinologist assured us that Timmy would get his teeth. He stated that one of his boys didn't get their 1st. tooth until he was almost 18 months old.

Within a few days following Timmy's Endocrinologist visit, WHAM, Timmy had his 1st tooth. Three months passed, no more teeth, but time once again for an Endocrinology visit.

Dr. Ali asked if Timmy had any teeth yet. We all were happy to show him that Timmy did indeed have 1 lonely tooth. The others will come he stated. Again within a few following the Endocrinology visit, SURPRISE, Timmy had his 2nd tooth. I swear that Dr. Ali must have placed Timmy's teeth. Once the 2nd tooth was fully in all the rest of Timmy's teeth started coming in like popcorn.

Unfortunately Timmy now has more teeth than his small mouth can hold. So in the near future Timmy will possibly have to have dental surgery to surgically remove some of his teeth to allow room for his permanant teeth as they come in.

Myself and Timmy's Home Health Nurses wiggled and wiggled this tooth for almost 2 months trying to get it out. Each time we would try Timmy would cry. This would break our hearts knowing that we had possibly caused him to be in pain.

Timmy's Teacher in now not only Timmy's Teacher, but also his Dentist. After us trying for what seemed like FOREVER to pull the tooth and Timmy crying each time., Mrs. Bishop asked Timmy to let her try. Timmy giggled and smiled (His way of communicating YES/Okay.) Mrs. Bishop tries twice and out pops the tooth. Timmy DID NOT cry once! Goes to show what a wonderful trusting relationship Timmy has with his school teacher.

Timmy had a Special late night visitor, who bought his very 1st. pulled tooth from him for a grand total of $7.00!

Poor Emily now wants all of her teeth to be loose so that she can pull them all and get some money. She has also request to speak with the Tooth Fairy so that she can inform her just how much she expects for all of her teeth.

Oh forgot to mention, Emily feels that her teeth are worth $20.00 a tooth. Yikes! She doesn't need a Tooth Fairy, she needs Bill Gates!
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