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I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....

Monday, February 14, 2011

Cool Dude...

We have been frantically searching for a "good" pair of non-jprescription sunglasses for Nate. Ones that are baby friendly and comfortable to wear. We finally found some that we like, that were pretty inexpensive. Baby Banz, http://www.babybanz.com/ had what we were looking for. The sunglasses have a nylon strap with velcro adjustment.  We only paid $29 this includes shipping. The thing that I didn't like about having to order from Baby Banz is that they only carry 2 colors, pink and blue. Amazon had many more color choices, but they were currently out of stock. And we needed something quick.

Nate's sunglasses arrived via USPS on Friday afternoon. Being that the weather was nice on Saturday we were able to go for a walk. It was sooo nice to be able to walk with Nate and him be able to open his eyes, look around and observe the world around him. Nate's eyes are very sensitive to light. In the past when we have gone on walks he has had to keep his eyes shut and this frustrated him.

Look out world, there is a COOL DUDE in town!


"I had much rather have a Harley and a Leather Jacket. But swinging is FUN!"

"Oh come one Timmy, Mommy says you have to share." This was Nate's 1st time outside having a turn in the swing. Judge for yourself whether he liked it or not.


Isn't he just the cutest???
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