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I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....

Sunday, April 24, 2011

Hop-py Easter

This was Nate's 1st Easter. He had lots of fun playing with the Hide-Em and Find-Em Talking Easter Eggs. He also enjoyed mine and his share of dinner. He had mashed potatoes and cranberry sauce.

Timmy enjoyed his Easter dinner. Floyd pureed Timmy some ham, cabbage and mashed potatoes. Floyd and I even agreed to take a gamble and gave Timmy 1 slice of apple crumb pie for dessert. Being that Timmy is a diabetic, he doesn't often get the luxary of enjoying sweets very often. To err on the safe side, Floyd checked Timmy's blood glucose 2 hours after his meal. Surprise, Surprise!  Or maybe not, being Timmy's glucose levels lately have been like a wild roller coaster ride. Ater consuming 70 grams of carbs, he blood glucose was 123!  Timmy is one diabetic that NO ONE will ever figure out what makes him tick!

I leave you with some Hop-py Easter cuteness......





















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