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I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....

Saturday, April 2, 2011

Hop Til You Drop

Now that Nate is 8 1/2 months old, most days he refuses to take even one short nap. Guess he is too afraid that he might miss something of great importance. So when he does fall asleep, I let him lay. In some cases, like the pictures show, I may be labelled a bad Mommy. But my motto is let sleeping baby's alone. Besides, if he is able to fall asleep in a compromising position, he must have been comfortable .

Isn't he just the sweetest!?!


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