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I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....

Tuesday, June 23, 2009

The Only Limitation Is Imagination

This article appeared in "Sports Are For Everyone" Newsletter late last year.
The Only Limitation is the Imagination
-Photography by Robert Wright-

There has been a long standing goal for Robert to find a vocational interest that he would be able to pursue in adulthood. He attended a non credit course at HVCC "So You Want To Work with Animals" but many of those occupations required much physical dexterity. It was a teacher with BOCES that identified Robert's interest in photography.

After a trip to the library, Robert was perusing a book of multiple occupations. He expressed interest in the pages that described photography of animals. During a session of his teacher taking pictures with the classroom camera, Robert used his tech scan device to say "I want a turn." His teacher then allowed Robert, with much assistance, to press the button to take a picture. His assistive technology teacher found an adapted camera online that Robert has been using.

Robert entered EJ Hanley’s high school class in September 2009. He became a member of the school’s yearbook committee that fall and was able to take pictures by having his teaching assistant hold the camera. By December, Robert's photography teacher noted that the assistant holding the camera for him really limited his creative independence. Once Robert acquired a camera mounting arm which attaches to his chair, he was then able to compose his pictures as he envisions them.Through books and media (including a video biography of Ansel Adams) Robert learned that photographers have assistants who do much of the physical work of photography. It is the job of the photographer to visualize the image and to direct the assistants.

With Robert's new found independence, he has been able to broaden his creative horizons to include diverse subject matter. Currently Robert is studying more about light and composition.

The grounds of the Double M Ranch while on the SAFE Halloween hay ride.

1 comment:

Michelle said...

You know, I've had the same thought about seeing if Emily would be interested in photography. Thanks for the informative post.

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