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I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....

Monday, July 27, 2009

1st. Day Of Kindergarten

Five years ago when I was asked what our plans and expectations were for Timmy when he starts school? At the time I couldn't answer this question. To me, that day was so far into the future I couldn't get my brain to even go there. The first 3 years of Timmy's life he was very sickly and didn't show much improvement developmentally. Thinking about, let alone making plans for Timmy's education wasn't at the top of our priority list.. These past 2 years we have been very blessed. Timmy has been very healthy and has shown tremendous gains developmentally, physically, mentally and cognitively. Now that Timmy has reached this wonderful milestone in his life, I can now answer that question posed so many years ago.

We want the same thing for Timmy that any parent wants for their special needs or typical child. We want Timmy to be able to attend a school in which the school has been adapted and equipped to handle a child with multiple disabilities. We want Timmy to have the opportunity to socialize with other special needs child as well as typical children of his age. We want a school where the staff, principal, teachers, and therapist are understanding, caring and supportive. We want a school in which Timmy's teacher is "willing" to adapt her teaching techniques and strategies to best help Timmy to learn. And a teacher who is willing to listen to, work along with and learn from us, Timmy's parents.

I feel that we have found all of this plus more in Timmy's school this year. Mrs. Vanessa is TERRIFIC!!!! She took a few days out of her summer vacation to attend a Deaf-Blind Conference, so that she could speak with professionals and other parents of Deaf-Blind children. She is reading anything and everything she can get her hands on, so that she can better teach Timmy. She is even considering furthering her education, so that she can gain a better understanding of Deaf-Blindness and ways to teach.

I LOVE Mrs. Vanessa's teaching style. She takes each child individually each day and works with them one-on-one. As a group each child has their own hands-on object to hold and explore as she tells the group about the object or the subject that the object pertains to.

Last year when Timmy attended Pre-K, he came home everyday exhausted. And his 2 favorite words that he used consistantly we MaMa Home. Today, Timmy surprised everyone, by showing us that he is capable of so much when placed into the correct enviroment. He IS the class clown and moderator. Timmy is able to make the unhappiest classmate smile and calm down the loudest with just a giggle. He is liked and loved by all.

I Think We Are Gonna Like It Here....!!!!

1 comment:

Michelle said...

Sounds like the class Emily was in. Her teacher was Ms Kim and she made school fun for everyone.

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