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I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....

Wednesday, July 8, 2009

Adapted Trike

Timmy received a trike as a gift this past Christmas. After 6 months of trying to find a safe way to adapt the trike so that Timmy could ride the trike, we have finally come up with a safe and inexpensive adaptation for the trike. Papa spent the weekend helping to adapt the trike for Timmy.

What we did was to remove the trike's original seat and replace it with an infant/toddler swing. The infant/toddler swing has a 3 point harness, which will help to secure Timmy into the seat and onto the trike safely. Papa had to drill holes in the swing, so that it could be bolted to the trike frame. We screwed velcros to the pedals. The velcros will help to hold Timmy's feet to pedals. For less than a $100, including the price of the trike, Timmy now has a trike in which he can enjoy riding.

It is ashame that companies are allowed to charge such astronomical prices for an adapted "special needs" trike/bike, when parents are able to adapt the trike/bike so cheaply. What is up with the 100% mark up in price, just because the term "special needs" is included in the items name????

1 comment:

Michelle said...

Wow, look at that bike! He's going to love it. I hear you about the "special needs" name attached to any equipment. We're looking for a new bar (special one) for Emily's ceiling lift to use it in the bathroom. You have to buy the whole thing at $1200, ya right.....

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