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I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....

Monday, July 13, 2009

Happy Birthday Emily!

A Birthday Party Fit For A Princess

What Makes Emily OUR Princess????

E= Eager to Learn new things.
M= Mild Tempered, Presevering, Patient
I= Inquisitive, Imaginative, Sneaky,
L= Loving, Caring, Gentle,
Y= Youthful, Has a sixth sense to know when her "special needs" brother is getting sick, before he exhibits any symptoms.

G= Good Natured, Easily pleased, Friendly, Good Hearted
A= Artistic, Athletic, A Drama Queen
E= Energetic, empathetic,
T= Tomboy, Lionhearted, Smart
H= Helpful, Happy, Good Humored

Some of Emily's Likes....

Emily likes looking at books, Listening & Dancing to music, painting/drawing, playing with Play-Doh, Pretending to be a Ballerina, Digging in the sand, Swimming.

Favorite Cartoons...
Mickey Mouse, Dora, Barney & Thomas & Friends. Favorite Tv. channel is "Noggin"

Her Favorite Animals...
Horses & Cats

Favorite Foods....
Hot dogs, Hash Brown Potatoes, Potato Chips, Meat Loaf, Strawberries, Gravy, Crabs.

Dislikes....
Bread, Corn, Chicken Nuggets, Peas, Cole Slaw. (Not too much that she won't eat.)

Favorite Colors.....
Purple, Pink, Yellow\

My Thoughts....
Emily is a very loving, caring, kind, considerate, little girl. Who Cherishes her "special needs" brother Timmy. Loves to "try" to help care for Timmy's needs by helping to feed him, play silly games with him or push him while he is on the swing, help take his blood glucose, listen to his lungs and YES, she even shows interest in "trying" to change his diapers! She is quick to let someone know when Timmy has an "accident" in his pants and needs to be changed. Off she goes to get diapers and wipes to change him. I just hope that as the years pass, Emily remains as loving, caring and close to her brother as she is now......

Even though the 2 girls who were invited to the birthday party didn't show up, Emily had a GREAT time. The 2 boys (brothers) Conrad and Owen are in Emily's Sunday School Class. They ALL had a FANTASTIC time eating, playing games and of course swimming!

A BIG Thank You to everyone who attended the birthday party!!! Thank you also for the birthday cards and gifts! Enjoy the pictures....

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