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I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....

Tuesday, August 25, 2009


Why is it that when kids do something cute there isn't a video camera anywhere around? Timmy's Kindergarten class was playing an adapted versoin of CandyLand today at school. Timmy was the one in charge of the switch which was used to indicate who's turn it was. Each time Timmy hit the switch a different students name would be announced. Well during game play the teacher and the other adults in the classroom got distracted by something. My 5 year old child, whom has a brain malformaton, whom some people say that there is ABSOLUTELY no way he is able to reason, had figured out the order of the names that were being announced with each press of the switch, kept pressing the switch until with the next ress of the switch would be his turn. Timmy's teacher announced that the game play could began once again. Mind you none of the adults noticed that Timmy had set the switch so that the next turn would be his. The teacher expecting the turn to be a different students was ready to help the other student count off their turn. Timmy presses the switch. The switch announces "his' name and Timmy throws his arms into the air, like YAY it's my turn again already! And starts laughing hysterically! Timmy's teacher was so confused, but yet shocked that he had figured out the turn order that her excitement got the best of her. She forgot to scold him for cheating. Yet another milestone met. Typical game playing behavior from a 5 year old, cheating.

We finally made our decision as to which Pre-K center to send Emily to. We have decided to remove her from Childcare Network, which is part of the More At 4 Pre-K Program, as well as a daycare for children from 6 weeks of age up to 12 years. Childcare Network is like a satellite center when the Public School Centers run out of room. We had Emily transferreed to J.C. Roe, one of the Public School More At 4 Pre-K Centers. I feel that Emily will have a more structured learning enviroment at J.C. Roe compared to Childcare Network. Emily is SOOOO excited to be going to a "Big Girl" school. And being able to ride a "Big Girl" school bus! We took both Emily and Timmy to Wal-Mart tonight to buy them a new backpack. Timmy chose a UNC backpack. And Emily chose a purple Tinker Bell backpack. We are still awaiting for Emily's teacher to contact us. Emily will attend J.C. Roe one day next week. The Pre-K Program does staggered enrollment, where only a set number of children attend school the first few day. Her full week will begin on Sept. 8th. With Emily attending J.C. Roe we will know exactly which days she will be out of school. She will have transportation to and from school each school day. And if by some chance she misses the bus, we only live a 15 minute walk to the school. I'll post first day of Pre-K pictures soon.

1 comment:

Michelle said...

Of course cheating! Wow, isn't that great? I had the same feeling when my Emily, about the same age, pretended she was sick while waiting for the bus. With Emily there is no communication, and usually no pretending. But once she acted like she was sick I told the bus driver to go because she wasn't feeling well. When I came back into the house she was laughing. HA! Joke on me!

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