It has been 2 weeks since Timmy had his trach removed. He is doing TERRIFIC!!!!! He had a decannulation follow up appointment on July 29th, at which time a sleep study was scheduled for Monday Aug. 3rd. Yeah, we were surprised and impressed that they were able to get the sleep study scheduled so fast.
According to the paperwork that we were given for the sleep lab, we were suppose to arrive by 6:30PM. We called and requested a later arrival time, because Timmy doesn't typically go to bed until 9:00PM. Big mistake! And as the saying goes, you learn from your mistakes.....
We arrived at UNC Hospital at a little past 8:00PM. It took Timmy's sleep tech 1 hour BEFORE she came in to hook him up to all of the necessary wires for the sleep study. It takes about an hour to hook someone up to all of the wires and make sure everything is hooked up and working properly. So of course, Timmy fell asleep. So an hour of study time was lost.
Dad asked how Timmy did, but of course the tech "can't" and/or wouldn't say anything except that they were able to get 5-6 hours of study time. DUH! At least 6 hours of study time, whether the patient sleeps or just lays awake is needed BEFORE insurance will pay.
Timmy has an appointment on Aug. 19th with his ENT (Dr. Zdanski) to go over the results of the sleep study. Once the sleep study is scored, it is passed on to someone in Pulmonology for review. So hopefully Pulmonology will have time to have reviewed the study before our visit.
My main concern is that Timmy may be having some apnea episodes. He doesn't drop his oxygen saturations, but if he is sleeping on his back, he does snore. In my opinion, when Timmy is placed on his back to sleep his sleep is restless, compared to that if he is placed on his side, which in my opinion is a much more peaceful sleep. Even though Timmy is hooked up to a pulse/oximeter monitor at night while he sleeps, I find myself going in to check on him several time a night. Once we get the results to the sleep study, IF the study shows that everything is ok, I'll be able to relax and get some much needed rest myself. But until then I'll worry and keep my nightly vigil. Isn't that what a mom is suppose to do?