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I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....

Tuesday, September 8, 2009

Official Start of School

Unfortunately I didn't get a picture this morning of Emily climbing aboard the "Big Girl" school bus. I had a question for the bus driver and Emily was soooo excited that she just pushed pass me and climbed on the bus. This will be Emily's first full week of Pre-K. Last week she only attended 1 day at "Big Girl" school. Our school district has what is called staggered enrollment, where only a few Pre-K and Kindergarten children attend school each day during the first week of school. Mrs. Maxey sends home a daily report and today's report states that Emily had a GREAT DAY! Emily says that her favorite part of the day was going outside to play on the playground.

Here are a few pictures that Mrs Maxey took on Sept. 2nd. and today, of the children learning while at play together. Sorry the pictures aren't very clear. The teacher uploaded them to a computer and printed them out for all of the parents.

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