My photo
I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....

Tuesday, September 22, 2009

Motherly Love To The Extreme!

Want to guess how many strands of spaghetti there is in a 8oz box? There are approximately 280 strands. A 2oz (! serving) of dry spaghetti has approximately 70 strands of spaghetti. How would I know this? And why would I want to know? Yes, I counted an entire 8oz box of spaghetti, peice by piece. Talk about Motherly Love to the Extreme!

Timmy is a very brittle diabetic. Every carbohydrate that he eats has to be counted. If we should happen to miscount somewhere, his blood glucose levels will either skyrocket or plummet. Due to his genetic disorder his cholesterol is extremely elevated. A typical meal for Timmy consists of a Chef Boyardee meal or a Hormel Dinner with a stage 2-3 baby food veggie and fruit. Both of these have tons of sodium, fat and cholesterol. We have been using these meals, because it makes mealtime easier. The total of carbohydrates are printed right on the back of the packaging. So simple. No having to try to figure out how many carbs there is in a particular food (not all brands of foods are listed in are Carbohydrate book) or having to guess when food are mixed during preparation.

We have decided to take on the task and challenge of preparing Timmy's meals, in hopes of getting his cholesterol level better under control. So being the Loving, Caring, Dedicated Mother that I am I took the time, instead of just guessing, to count every single strand of spaghetti tonight, so that Timmy could have spaghetti with the rest of the family.

Or maybe we should just let Emily manage Timmy's diabetes......
She would stop feeding him. According to her, this makes him waaay to sweet. And give him enormous amounts of insulin, because this doesn't make him sweet anymore. Hmm, now that I think about it, I can see why she wouldn't want him too sweet. Having him not to be sweet, she would be able to prove that Timmy IS the one who is always doing something that he isn't suppose to, like jumping on the bed, then onto the floor! Or the one who actually snuck that 2nd popsickle out of the freezer and gave it to her! Can you feel the love?

1 comment:

ANewKindOfPerfect said...

Ahh, the things we do for our kids. :)

Blog Archive