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I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....

Wednesday, October 7, 2009

Saturday At The Park

I was hoping to be able to get these posted sooner, but we all have been taking turns with a yucky 72 hour virus of some sort. My turn happened to be Saturday evening through Tuesday. Timmy's turn also happened to be the same time as mine. How lucky we were to have been sick together.

We have found the cure to Emily's hyperactivity. Just take her to the park for 2 hours and let her run wild! She took a 2 hour nap upon our arrival back home.

As you can see, Mr. Timmy LOVES to swing while the warm sunshine hits him in the face. I too LOVE the warm sunshine. I think we both will choose to come back as cats in our next life.

We all had forgotten that this past weekend was River Fest and that each year there is a horse show at the park. Luckily, Coastal Therapy Riding was there and we were able to get info. We are seriously considering signing Timmy up for therapy riding sessions. These sessions would greatly help Timmy with his balance, help him to be more aware of his body in space and possibly help with his head positioning in conjunction with balance.

We took the kids to feed the ducks and geese at the park. I really wanted to take Timmy out of his stroller so that he could help feed the ducks, but as you can see the ducks and geese out numbered us greatly. So I felt that Timmy was safer in his stroller and just listening to the ducks.

Timmy was assigned the most important job of all, Bread Distributor. Someone had to be incharge or else Emily would have just feed all of the bread to the ducks at once.

Why is it that ducks and geese always act as though they are starving, even after they have been fed? We had to sneak away as Emily explained it, so that we didn't get tacked.

Notice how she is dressed? An everyday dress, shorts, socks and sneakers. I swear I didn't dress her. I was able to get her to come to a compromise. To wear the shorts under her dress, which she insisted that she HAD to wear to look bootiful. This picture was taken almost 2 hours after her running and playing in the hot sun. She's tired, can't you tell? I guess the pumkin patch will had to wait til another day.

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