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I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....

Saturday, October 31, 2009

Happy Halloween

Here is our Little Princess in her Halloween costume. If you can't tell, she is supposed to be dressed up like a Princess. But being 4 years old and independant, she had her own idea as to what she felt that a Princess should look like. I wanted to add a tiara in her hair, more jewelry and for her to wear different shoes, but she wasn't having any of it. So dad took her out Trick-Or-Treating for about an hour. She came home with enough candy to last all of us for a year! You are probably wondering "why" we didn't take Timmy out Trick-Or-Treating? Well, for several reasons; 1. He can't eat the candy and Emily got enough for the entire family for a year! 2. He gets very restless just sitting in his kidkart, when we aren't doing much to stimulate him. 3. I was scared that he might pick up some virus, being out around all o fthose strangers. Even though Timmy has had his swine flu and his seasonal injections, just the thought of the shot not working scares the wholey cow out of me!

Here are a  few pictures from Halloween past.....

Timmy's 1st Halloween,
October 2004.
He was almost 1 year old!

Halloween of 2006. At the Pumpkin Patch. Timmy is almost 3 years old!

Halloween of 2006. At the Pumpkin Patch.
Emily is 13 months old. Timmy is almost 3 years old. Boy have they both grown! And Timmy has come a looong way developmentally.

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