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I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....

Sunday, October 25, 2009


All of the children that I know LOVE to go shopping. They beg to go to the store so that they can get some candy or a toy. I have even witnessed children having a major melt down in the toy section of a depeatment store, because they were not ready to leave. All of my children LOVE to go shopping, with great expectations of being able to get a toy or some candy. I have seen times, when all I needed was a couple of items from the store and actually had to sneak out of the house just to be able to make a quick dash to the store.

Well, actually all of my children LOVE to go shopping except for Timmy. He HATES to go shopping anywhere. He has some kind of special radar, which seems to alert him that we have just entered a store. As soon as we step inside the doorway, not feet, but merely inches, Timmy goes into a full blown major temper tantrum! Screaming, crying, his face turns beet red, his entire body goes rigid.  It doesn't matter if the store is crowded or almost empty, if we are at a department store, a pharmacy or a grocery store. We have yet to figure out the reason behind this behavior, except for the fact that he HATES to go shopping.

We have tried taking him out of his stroller and carrying him around in the store. At least, this way we felt that if it were a security issue he would feel safe in our arms. Doesn't work. We have tried talking to him and helping him work through the tantrum. Doesn't work, he just gets louder. We have tried taking him into the restroom thinking that being away from the atmosphere of the store and a diaper check might help. Doesn't work. We have walked into the outside garden section of Wal-Mart hoping that this would calm him down and give him the sense that he was once again outside. Even this trick doesn't work. The only thing that will calm him down is for us to COMPLETELY leave the store with him. Immediately upon stepping outside of the store, not by feet, but by mere inches, he stops with the tantrum and gives us this BIG smile and a giggle.

Most of the time Dad or Timmy's Home Health Nurse will take him outside so that the shopping can be completed. Yesterday when we went to Wal-Mart to pick up some party supplies for his upcoming birthday party. You guessed it, Timmy immediately went into his melt down. Timmy's nurse carried him back outside to the car, which left me pushing his stroller around empty in the store. A customer stopped me and pointed out that the baby was no longer in the stroller. Sorry guys, but I just couldn't resist. I replied, while clutching the bag of party supplies that I had just purchased, "Oh, I know. Wal-Mart now has this new trade it plan. Swap any item for food. I just left him over there (pointing towards the toy isle) with the other Cabbage Patch Kids!" The look on the person's face was priceless. I walked away without saying another word.

What can I say, stupid comments sometimes deserve stupid replies.

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