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I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....

Thursday, October 8, 2009

Fire Safety Week

This week is fire safety and prevention week. Our local fire departments take some time out of their busy schedules each day to visit the Pre-K and Elementary Schools in the area. Today the firemen came to visit Emily's Pre-K school. Unfortunately, I was not told in advance that the firemen would be visiting, so I wasn't able to get any pictures of Emily at school with the firemen, fire truck and the fire dog. But I did take the opportunity to snap a couple of cute pictures of her when she got home.

Mom: Can you tell me what you learned about fire safety today.

Emily; Yes, I learned I want to be an astronaut instead. Being a fire fighter is hard.

Mom: So what do astronauts do?

Emily: They go to out space.

Mom: Don't you think that being an astronaut would also be hard work?

Emily: Noooo silly. All they do is fly.

Mom: Wouldn't learning to fly be hard work?

Emily: Noooooo, birds do it all daaaay.

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