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I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....

Wednesday, February 2, 2011

100th Day

Today is Emily and Timmy's 100th day of school. They each had to do a project that included 100 objects to represent the 100th day of school.  I have to admit this my favorite project of the school year. I get to use my creativity to guide Emily and Timmy in learning.

This year was Timmy's 2nd year doing this project. This year the project was lead by the UNCW student teacher in Timmy's class. Brandi made up bags which contained a paper hat and a few object to help get parents and the child started with making the 100th day hat.

Where's Timmy?



We used a blue Bingo Dobber, sticky back ABC's, the numbers 0-9, and a few other miscellanous "shaped" objects that had to be glued to complete the hat. Doesn't he look so cute?


100 multi colored pom-poms glued to a paper plate make up Emily's hat. She had LOTS of fun helping to make her hat. She  was so proud of her creation she wanted to wear the hat to bed last night and to the bus stop this morning. We came to a compromise, she was allowed to wear the hat for a few minutes this morning before we left out to go to school.
How adorable is she?

I looking forward to next year!
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