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I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....

Friday, June 3, 2011

Fun Day At School

Wow, this school year has flown by! It's hard to believe that this school year is coming to an end. Zach's last day of school is only 4 1/2 days away. And Tim and Em's is 9 1/2 days.

It wasn't until a couple of days ago, when I was looking through some pictures that had been take earlier in the school year, that I realized that Tim will be in 2nd grade, Emily will be in 1st. and Zach will be in the 10th. 

Tim and Em's school had Fun Day today. Floyd, Nate and I went to the school to have lunch with the kids and to do a lil socializing. Floyd took a few cute pics of the kids. Floyd just isn't a photographer. I wish he had taken more ics of Em's class enjoying the outdoor activities. Hopefully one of the other parents will upload a few so that I can add them to the blog.  

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